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A Wheel Opportunity

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It is a beautiful day and the weather outside is perfect.  You decide you will take a stroll to your local coffee shop to grab a cup of joe.  You grab your wallet, phone and keys and head out the door.  Perhaps you stop to chat with a few people along the way; life is great and you are feeling good.  You continue on and are almost there when you see a person in a wheelchair approaching from the opposite direction.  You don’t really think anything of it until the distance between you closes in and you realize Continue reading →

October 2018 – Regional Rare Neuro-Immune Disorders Symposium

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The Transverse Myelitis Association, in partnership with Boston Children’s Hospital Center for Pain and The Brain, is excited to host the 2018 Regional Rare Neuro-Immune Disorders Symposium (RNDS) in Boston, MA this October! The RNDS is an education and advocacy conference for families, caregivers and individuals diagnosed with Acute Disseminated Encephalomyelitis (ADEM), MOG Antibody-Associated Disease, Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (including the subtype Acute Flaccid Myelitis). Continue reading →

I Am Not My Chair

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Today, I was asked if I was wheelchair bound.  The question actually threw me off guard for a moment and I found myself struggling to answer the question.  I can’t quite recall my exact answer but I babbled something about being able to use my walker to walk around the house 5 or 10 percent of the time.

As the day progressed, I continued to think about that question and my discomfort with the answer I gave.  Why did I feel like a liar for telling the truth. Continue reading →

Share Your Story – Inspire The World

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Overcoming the obstacles that we face in life can become quite challenging  and will often make us feel as if we are running into a brick wall.  How many times have we met with adversity that seems to take us right back to square one?  How many times have we changed course or implemented a new plan to get better results only to find that we’ve just inched a few steps forward?  I’m sure you will agree that its frustrating, right.  Well, I’d like to encourage you to take the focus off of the frustration, instead I’d like you to refocus on the few inches forward that you just achieved.  Why?  Because inches add up! Continue reading →