Osteogenesis Imperfecta (OI), more commonly known as brittle bone disease, affects approximately 1 in 15,000 people. A genetic disorder whose impact on the bones can range from mild to severe and is caused by defective genes which compromise how the body makes collagen. Collagen is a protein that helps to strengthen bones. Subsequently, a person diagnosed with OI can experience hundreds of bone fractures for no apparent reason. An OI diagnosis would seem daunting at the very least now try to imagine living life in such a delicate state. Well, no need to imagine because we met Kaustuv Dasgupta who cleared up any questions one might have on how to life a happy, productive and fulfilling life with OI. Continue reading
Joy Elan was born with a hearing loss and has been wearing hearing aids since she was 15 months. Despite the obstacles she faced, she overcame many of them and continues to overcome obstacles. Her mother always told her that she had three things against her: Black, female, and disabled.