Exactly what does it take for California state legislators to recognize the toll that a rare disease such as Transverse Myelitis (TM) has on it’s constituents.   It takes a dedicated California resident; Sandy Rey, a woman who poured her soul into raising awareness for a condition that she herself lives with.

A TM diagnosis is life altering to say the least.  The challenges faced by those living with  TM can be compared to living life trapped on a perpetual rollercoaster where the tumultuous ups and downs never cease.  All while your family, friends and community are helplessly planted on the ground watching you scream your way through the ride.

Sandy knew that she had to do something to make a difference so she single handedly took on this seemingly impossible mission.   Continue reading →